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  1. National Organization for Rare Disorders | NORD

    Jan 21, 2026 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. …

  2. Financial Assistance For Patients With Rare Diseases | NORD

    NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already adequately …

  3. List of Rare Diseases | A-Z Database | NORD

    What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies …

  4. Centers of Excellence - National Organization for Rare Disorders

    NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of …

  5. About Us - National Organization for Rare Disorders

    Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.

  6. Getting Started - Understanding Rare Disease Information | NORD

    Home / Understanding Rare Disease We acknowledge the hard work of families, caregivers and others with programs like NORD Caregiver Respite which allows people some time away while knowing …

  7. Patient Assistance Programs - National Organization for Rare Disorders

    Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial …

  8. Events - National Organization for Rare Disorders

    NORD and Yale Genetics are hosting a Rare Disease Day celebration at the Yale Peabody Museum! Join us for a night of community building & connection. Attendees will have opportunities to network …

  9. Rare Disease Facts and Statistics | NORD

    Authoritative overview of rare disease prevalence, impact, and critical statistics to raise awareness and understanding.

  10. Living with a Rare Disease | NORD

    NORD helps those living with rare diseases find patient assistance programs/financial assistance programs and help them get a diagnosis.