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✨A Day in the Life: Treatment Edition✨ We get asked a lot — what does a Brineura treatment day really look like? So we’re taking you behind the scenes of one of our treatment days as a CLN2 family. 🩵 Sam gets his enzyme replacement therapy every other week, and since our hospital is 3 hours away, we travel the night before so he’s not stuck in a car and a hospital bed for too long — especially for our now 20-month-old who started this journey at just 9 months old.🩵 🕕 Our day starts bright and
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